This blog is dedicated to my son, he is among the strongest, bravest souls I know, fighting the effects of Mitochondrial Disease. Through God's grace,I share our story,one that is lived day to day...some days I am given reasons to rejoice and other days are shattered by the effects of seizures and broken dreams. At the end of the day I give it all to God, and place my precious Hudson in His hands, He who created him.
Tuesday, November 3, 2009
wait and see...because we are not out of the woods!
Last night Hailey started coughing, Hunter claimed he had swine flu (my hypochondriac) and Hudson just kept coughing as he has the past 5 weeks now. Paul and I were able to go out for our anniversary and I got a gorgeous bouquet of red roses delivered yesterday. So we had a couple hours to ourselves only to come home to 3 kids in bed with us asleep at 8:30...which is a bit early for them to fall asleep.
I kind of felt hyper-sensitive all night, thinking and dreaming flu,(got an email from another friend who joined us for Halloween, and her son was spiking a fever last night) so when I heard Hudson coughing all night, not knowing if it was a dream or reality, I opened my eyes and realized it was 3 a.m. and he was having a hard time. I got up and bless his soul....he is lying there, scootched way down in his crib, off the pillow that was propping his head up, with eyes closed...hacking away. I rolled him on his side because he sounded really gurgly, and thought it would help drain the mucous and maybe stop the tickle...guessing of course that it is a tickle. Sound asleep he remained. I noticed a scent...checked his diaper...it was loaded! Although he was sound asleep I could not let him sleep in poop, so I rolled him onto his back and went at it....he of course woke up and started crying, and coughing worse. When I took his p.j. bottoms off his legs were very warm and I noticed he had bright red cheeks and he was sweaty...I choked on a big lump in my throat. I took his temp and it was 100.00 I gave him motrin, suctioned him out, put his mobile on, and rolled him back on his side. I crawled back in to bed and got teary eyed thinking and praying what this could mean for Hudson.....
You see, Hudson is truly an angel. He is not demanding at all, he sleeps like a dream, he really only cries if he is gassy or overtired, he goes through so much every day, and yet he is the sweetest, most darling little soldier-boy who loves to be loved and snuggled and talked to. I don't want to think of the posibilty that he may yet have to endure more, on top of everything else. I am trying to stay calm, but this beautiful boy tugs on my heart string every time I look into his big brown eyes, I can't stand the suffering.
He woke up crying this morning....coughing.....I took him out of the crib and he had dried mucous all over his cheek and a crusty nose. No fever! I washed him up with a warm cloth and sat him on the floor to suction the gurgles and as I was suctioning him his eyes were shutting...he was falling asleep. Back in his crib he went, lying on his side...I have been checking on him, he is still sleeping. I haven't even fed him, because I know it will wake him up and I think he needs as much rest as he can get right now.
After taking care of Hudson....I walked into Hunter and Hailey's room to get them ready for school. Hunter would not get out of bed. Says he is sick. He seriously is a hypochondriac...it is really bad. Then there is Hailey...pops out of bed, gets dressed, goes in the bathroom and as I am doing her hair I notice her eyes look a little funny to me. She says she feels like she is going to throw up, she doesn't want to brush her teeth. I take her temp....99.8. Back in her jammies she went. Hunter still claims he is too weak to go to school. I take his temp. 97.4....So I got him to school.
I took Hailey's temp again when we got home and it was 98.6, but she insisted on needing Motrin (she likes the taste!) So far she is doing fine (fingers crossed)
I know how quickly this flu can come on, so I am on pins and needles, praying somehow it does not manifest.
If anything changes I will update....I just really need prayers for my angel and his brother and sis....thanks to everyone who reads and cares so much...it means the world!
Monday, November 2, 2009
Exposure
We know for sure all 3 of our kids have been exposed to the H1N1. One of the kids from our Halloween Party came down with symptoms yesterday and it was confirmed this afternoon. Believe it or not, this child had the nasal mist 2 weeks ago and still got it! Prayers are appreciated that she will be feeling better soon.
Please say an extra prayer for Hudson, that somehow God will protect him and our other 2, the next 24 hours we should know if they ( or Paul and I) have it. Blaming myself if any of them get it.
Off to sanitize.....
Please say an extra prayer for Hudson, that somehow God will protect him and our other 2, the next 24 hours we should know if they ( or Paul and I) have it. Blaming myself if any of them get it.
Off to sanitize.....
Sunday, November 1, 2009
Our Halloween Continued...
The kids woke up this morning and said they had the best Halloween followed by a "thank you mommy"....which makes all the work, and exhaustion well worth it! Above we have Tony Hawk (Hunter), Miley Cyrus aka Hanna Montanna (Hailey) and the sweetest candy corn (Hudson)ever!
Gig Harbor's downtown is a cute little fishing town with store fronts,businesses,restaurants, and bed-n-breakfasts. Many locals come for the weekend to get away from the hustle and bustle...we are fortunate to live here. As long as we have been here we have always joined the annual trick or treating in the harbor. The Gig Harbor Police shut down the main streets downtown and all the merchants give out candy, dress up, etc. It has become quite a production over the years and everyone seems to gather, hundreds of cute ghosts and goblins decked out with their famalies to celebrate halloween, even alot of the grown ups dress up. It is safe and loads of fun!
We decided to not take Hudson downtown....weather wise he would have been fine, as you can see it was a beautiful fall day, I just have really been avoiding taking him into crowds and public places. Paul stayed home with him and I took Hunter and Hailey. It sucks...to always have to do things seperate, not as our whole family, it seems we are always having to do things like this often. Hunter and Hailey have gotten really good about understanding why we can't be together as a family at times and now especially with the H1N1, they are very protective with Hudson. So for my own selfish reasons it stinks, but for Hudson it is what is best. In a way it makes it easier that he really doesn't know he is missing out on anything, on the flip side I wish he knew he was missing out! I overheard Hailey ask one of the kids at our party if they washed their hands...."We are washing our hands as soon as we come into the house, we are trying to keep him healthy," she says....such a mommy she is!
Gig Harbor's downtown is a cute little fishing town with store fronts,businesses,restaurants, and bed-n-breakfasts. Many locals come for the weekend to get away from the hustle and bustle...we are fortunate to live here. As long as we have been here we have always joined the annual trick or treating in the harbor. The Gig Harbor Police shut down the main streets downtown and all the merchants give out candy, dress up, etc. It has become quite a production over the years and everyone seems to gather, hundreds of cute ghosts and goblins decked out with their famalies to celebrate halloween, even alot of the grown ups dress up. It is safe and loads of fun!
We decided to not take Hudson downtown....weather wise he would have been fine, as you can see it was a beautiful fall day, I just have really been avoiding taking him into crowds and public places. Paul stayed home with him and I took Hunter and Hailey. It sucks...to always have to do things seperate, not as our whole family, it seems we are always having to do things like this often. Hunter and Hailey have gotten really good about understanding why we can't be together as a family at times and now especially with the H1N1, they are very protective with Hudson. So for my own selfish reasons it stinks, but for Hudson it is what is best. In a way it makes it easier that he really doesn't know he is missing out on anything, on the flip side I wish he knew he was missing out! I overheard Hailey ask one of the kids at our party if they washed their hands...."We are washing our hands as soon as we come into the house, we are trying to keep him healthy," she says....such a mommy she is!
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Hudson Tyler
Our sweet angel!