We have been back 2 weeks and...
Hudson is sick!!!!!
I just can't believe how quickly he has come down with *something*
A bad cold and likely will stay a cold because I started him on antibiotics the minute he started spiking a temp.
I have NO back up if he spirals, and mito kids spiral really fast. One minute he can seem "coldish" and the next he is working hard to breathe, gurgly, sleeping a ton...this was the scene on Monday. All I kept thinking was what would I do if he spirals through the night...I have no one! My mom is gone, my husband is far....Hudson's E.R. track record is middle of the nighters....I actually felt fear...for me and Hudson.
Thankfully later in the evening he started giving some good coughs and sneezes which cleared the gook in his throat and his breathing became more and more effortless. With antibiotics on board he seems to have a snotty nose, gunky throat and coarse cough....no more fever. He is sleeping a lot more during the day too, which bothers me. He was so active there for a while, and I know it is just his little bodies way of fighting, but I like the spunky Hudson much better.
With sickness, hate to say it, but I am seeing the stronger seizure resurfacing. I believe it is the tonic he was having before, just hasn't quite gained its strength but definitely ramping up....it's the cry that tells me so....he is crying out as it tries to grip him but doesn't hold him as it did in the past. No clusters after, which is great because that would only lead to vomiting and we don't need that!
I know this is happening because his body is using all its energy to fight this cold, and so it is likely that these stupid seizures would get worse, I am not surprised, it is just hard to watch and hear after catching a break.
Unfortunately, we are all kind of going through this adjustment period...Hailey has a stuffy nose, Hunter's having his emotional issues and it is affecting his health too, and I feel like Hudson's snotty nose on me all day could be the start of my cold!
We are on our own...I can't get sick, must soldier on, it is up to me and only me to stay and keep us afloat....
This blog is dedicated to my son, he is among the strongest, bravest souls I know, fighting the effects of Mitochondrial Disease. Through God's grace,I share our story,one that is lived day to day...some days I am given reasons to rejoice and other days are shattered by the effects of seizures and broken dreams. At the end of the day I give it all to God, and place my precious Hudson in His hands, He who created him.
Wednesday, September 8, 2010
Monday, September 6, 2010
Dear Anonymous,
I wasn't even going to waste my time or energy responding to the comment you posted...
I can take insults and grenades thrown my way...you can criticize my blogging all you want...
BUT you don't insult my children...
not on my platform...
no...that just doesn't sit well with me AT ALL!
Clearly you knew well enough you were being hurtful by not showing your face...
I am pretty certain no one is holding a gun to your head making you read my blog,
so please just stay away.
One last thing...
I am sorry for whatever is going on in your life that you have to anonymously be a bully on the internet...
you will be in my prayers.
I can take insults and grenades thrown my way...you can criticize my blogging all you want...
BUT you don't insult my children...
not on my platform...
no...that just doesn't sit well with me AT ALL!
Clearly you knew well enough you were being hurtful by not showing your face...
I am pretty certain no one is holding a gun to your head making you read my blog,
so please just stay away.
One last thing...
I am sorry for whatever is going on in your life that you have to anonymously be a bully on the internet...
you will be in my prayers.
Sunday, September 5, 2010
A full first week back home
(a toast to the new school year during our habachi dinner)
The kids had a great first short week back at school. Both kids love their teachers, and are so happy to see friends.
Between back to school and fulfilling my promise to Hunter to have a small sleepover bday party, I have been insanely busy. I decided along with Hunters 2 friends that were to spend the night, I could have the moms over too to catch up since we were gone all summer.
Hunter's birthday is officially over....it has been the longest celebration ever!!!!
He is a very appreciative kid, so I am happy to put a smile on his face. All night and the following morning his little arms and hands would wrap around my waist with a "thank you mommy for the best birthday!" he did this several times, which made my heart gush.
The boys were super excited about bday breakfast....M&M Pancakes topped with whipped cream and drizzled chocolate sauce, homemade hash browns and bacon....they were quite energetic after that breakfast :)
Another big happening...
Hailey is riding a 2 wheel bike!!!
She is so excited and loves it...she is not thrilled about cruising the neighborhood on her brothers old wheels though!
So...
now I breathe, and get ready cuz it is Hudson's turn...
next week he has a dental apt at Children's (his 1st time their) and 2 therapist from the school district will come over. He is still doing well....if you know what I mean ;)
He is sleeping well too....we all are...ahhh, the p.n.w. air...crisp and cool...perfect sleeping weather!
We are struggling with Daddy gone...
I am doing better, I get in my groove and get used to being alone,although at times I just cry too...
it has been very emotional around here...
Hailey has probably had the easiest time so far...
Hunter is really struggling.
Paul and I had a good talk and we sort of have a timeline and plan, so I feel a little better.
I don't want to communicate too much to the kids because we all know how things can change so quickly but I am glad we were able to come up with a game plan.
On top of all that is going on in my household, my mom left last week for a European cruise with Fred :)))) big smile!
I have been taking care of her dog and house, which is just "one more thing"
the dog is peeing and pooping in the house and this morning threw up...I keep the back door open for her all day so there is no reason for the mess....since she had those seizures she has been doing this though.
So I have had to clean up mess after mess.
I talked to my brother and begged him to come and hang at my moms house for few days to give me a break...I told him his niece and nephew really, really miss him ....I will tell him anything just to get him out here to help....I will cook for him every night if he just takes care of that dog for a few days!!!!
No plans for tomorrow...
Hunter has a load of homework already and I am hoping to pick my brother up from the airport.
I decided I am going to try and get to the Y with Hudson this week to get into a routine (crossing fingers) and will return to church next Sunday. (we are recovering from the sleepover today...all of us slept til 9:30 this morning!)
and just in case you didn't know...
fall is my absolute fave time of year which is why I changed the colors on the blog!
The kids had a great first short week back at school. Both kids love their teachers, and are so happy to see friends.
Between back to school and fulfilling my promise to Hunter to have a small sleepover bday party, I have been insanely busy. I decided along with Hunters 2 friends that were to spend the night, I could have the moms over too to catch up since we were gone all summer.
Hunter's birthday is officially over....it has been the longest celebration ever!!!!
He is a very appreciative kid, so I am happy to put a smile on his face. All night and the following morning his little arms and hands would wrap around my waist with a "thank you mommy for the best birthday!" he did this several times, which made my heart gush.
The boys were super excited about bday breakfast....M&M Pancakes topped with whipped cream and drizzled chocolate sauce, homemade hash browns and bacon....they were quite energetic after that breakfast :)
Another big happening...
Hailey is riding a 2 wheel bike!!!
She is so excited and loves it...she is not thrilled about cruising the neighborhood on her brothers old wheels though!
So...
now I breathe, and get ready cuz it is Hudson's turn...
next week he has a dental apt at Children's (his 1st time their) and 2 therapist from the school district will come over. He is still doing well....if you know what I mean ;)
He is sleeping well too....we all are...ahhh, the p.n.w. air...crisp and cool...perfect sleeping weather!
We are struggling with Daddy gone...
I am doing better, I get in my groove and get used to being alone,although at times I just cry too...
it has been very emotional around here...
Hailey has probably had the easiest time so far...
Hunter is really struggling.
Paul and I had a good talk and we sort of have a timeline and plan, so I feel a little better.
I don't want to communicate too much to the kids because we all know how things can change so quickly but I am glad we were able to come up with a game plan.
On top of all that is going on in my household, my mom left last week for a European cruise with Fred :)))) big smile!
I have been taking care of her dog and house, which is just "one more thing"
the dog is peeing and pooping in the house and this morning threw up...I keep the back door open for her all day so there is no reason for the mess....since she had those seizures she has been doing this though.
So I have had to clean up mess after mess.
I talked to my brother and begged him to come and hang at my moms house for few days to give me a break...I told him his niece and nephew really, really miss him ....I will tell him anything just to get him out here to help....I will cook for him every night if he just takes care of that dog for a few days!!!!
No plans for tomorrow...
Hunter has a load of homework already and I am hoping to pick my brother up from the airport.
I decided I am going to try and get to the Y with Hudson this week to get into a routine (crossing fingers) and will return to church next Sunday. (we are recovering from the sleepover today...all of us slept til 9:30 this morning!)
and just in case you didn't know...
fall is my absolute fave time of year which is why I changed the colors on the blog!
Wednesday, September 1, 2010
an old familiar friend
Back to school...
which brings an old familiar face to the Austin House, well 2 really...
Peace and Quiet...
it is eerily quiet around here this morning.
no giggles, running, fighting, wrestling...you know, the brother sister love/hate relationship!
Just me and Hudson....I don't mind this type of peace and quiet...
I can get the house cleaned up without little ones trailing behind me messing it up...
I can go grocery shopping without 2 other bodies and hands throwing stuff in the cart...
I don't have to listen to the sounds of Sponge Bob, and I-Carly...
I am sure by 3 I will be more than ready for my little ones to be home...
but for now the peace and quiet is a bit refreshing.
I got them to school very "on time" (we are notorious for being tardy daily!)
it worked out well....the classrooms were only a little filled, they didn't seem to notice a ton of dads, and Paul did call them during breakfast to wish them a good day...it seemed a little easier than anticipated...no tears from any of us.
I have decided to uphold tradition even thought Paul isn't here.
I will set and prepare the table for Japanese dinner tonight on the habachi ...
it is a lot of work for just me and the kids, but I don't want them to go without...so I will just do it on a smaller scale.
Hudson happenings...
he fell off the couch yesterday. He was napping, woke, and within 5 min. of waking I heard him whining and he managed to land opposite direction on the floor. I also found him in a awkward position the day before. I had him on the floor with toys, went to check on his as he was very noisy whining, and he managed to roll himself from back to tummy (never does that direction) and pinned his legs and hips under the tv cabinet preventing him to be able to roll back over to his back! I couldn't believe my eyes...lately there is no safe place to put him!
His seizures have remained ...do I dare say.... small
he is still seizing daily,but it is less-intense, less-frequent, and no clusters....it has been wonderful.
which may be the reason for more movement and activity.
I think he may be in shock....weather speaking
we went from 100+ temps to 50-60 temps....
he has been waking very early, 7 ish, but this mornig 5:30ish...his hands are always freezing...
I bring him in to my bed and he goes to sleep right away...(picture above)
I almost would say he wakes and yells out til I grab him and put him in my bed...
not a habit I want him to get used to!
He needs to get therapy bad, especially while things are going better, but he doesn't start up
P.T. until the 22nd and I haven't even heard from the school for his home-based therapy.
I have been thinking I may need to consider getting him a bed in the near future...
he is still in his crib.
I like it cuz it is safe...railing and all...he can't roll off like he could a bed.
So....
off to clean, shop, and prepare a back to school dinner for my 1st and 3rd grader
(can't believe how fast they are growing :(
which brings an old familiar face to the Austin House, well 2 really...
Peace and Quiet...
it is eerily quiet around here this morning.
no giggles, running, fighting, wrestling...you know, the brother sister love/hate relationship!
Just me and Hudson....I don't mind this type of peace and quiet...
I can get the house cleaned up without little ones trailing behind me messing it up...
I can go grocery shopping without 2 other bodies and hands throwing stuff in the cart...
I don't have to listen to the sounds of Sponge Bob, and I-Carly...
I am sure by 3 I will be more than ready for my little ones to be home...
but for now the peace and quiet is a bit refreshing.
I got them to school very "on time" (we are notorious for being tardy daily!)
it worked out well....the classrooms were only a little filled, they didn't seem to notice a ton of dads, and Paul did call them during breakfast to wish them a good day...it seemed a little easier than anticipated...no tears from any of us.
I have decided to uphold tradition even thought Paul isn't here.
I will set and prepare the table for Japanese dinner tonight on the habachi ...
it is a lot of work for just me and the kids, but I don't want them to go without...so I will just do it on a smaller scale.
Hudson happenings...
he fell off the couch yesterday. He was napping, woke, and within 5 min. of waking I heard him whining and he managed to land opposite direction on the floor. I also found him in a awkward position the day before. I had him on the floor with toys, went to check on his as he was very noisy whining, and he managed to roll himself from back to tummy (never does that direction) and pinned his legs and hips under the tv cabinet preventing him to be able to roll back over to his back! I couldn't believe my eyes...lately there is no safe place to put him!
His seizures have remained ...do I dare say.... small
he is still seizing daily,but it is less-intense, less-frequent, and no clusters....it has been wonderful.
which may be the reason for more movement and activity.
I think he may be in shock....weather speaking
we went from 100+ temps to 50-60 temps....
he has been waking very early, 7 ish, but this mornig 5:30ish...his hands are always freezing...
I bring him in to my bed and he goes to sleep right away...(picture above)
I almost would say he wakes and yells out til I grab him and put him in my bed...
not a habit I want him to get used to!
He needs to get therapy bad, especially while things are going better, but he doesn't start up
P.T. until the 22nd and I haven't even heard from the school for his home-based therapy.
I have been thinking I may need to consider getting him a bed in the near future...
he is still in his crib.
I like it cuz it is safe...railing and all...he can't roll off like he could a bed.
So....
off to clean, shop, and prepare a back to school dinner for my 1st and 3rd grader
(can't believe how fast they are growing :(
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Hudson Tyler
Our sweet angel!