Hudson's normal?

Just a taste of what my sweet boy goes through...
If I could, I would just have the suction machine constantly attached to his mouth...I have never used this device so much on a daily basis.
It has been over a month of this...and what you will see is not him at his worst.
Tonight I will start him on yet another round of Augmentin....
I have limited our "outings" and our gatherings to avoid exposure. Yesterday was the first time in a month I went to the Y....and even after I explained to the caregivers what's been going on, at pick up I heard about the coughing and gunk they were wiping....I don't want to be looked at as one of "those moms" you know...the kind that drop their sick kids off, not caring how many kids get sick because of it. No...I don't drop my already sick, now sick-sick kid off just to go work out...but I miss working out...an hour of "me time"...but it looks as though it's not happening anytime soon.

In the video I lift his pajama top so you can see how hard his little frame is working with all this gunk...it is just heartbreaking. On top of all meds, I am now trying to keep him on a steady dose of Claritin, in case any of it is allergy related. I don't know what else to do...I feel helpless at times,most of the time... and it sucks!

I just wish...on top of everything else he goes through...we could clear this up...is it really only the beginning of the cold/flu season? Ugh...


((((((Sigh.....)))))







Hudson had a tonic seizure and this was at the tail end as it was releasing its grip on him

Frustrated

My head and heart really are not into this blog lately, but I felt I owed it to my faithful friends to at least let you know we are o.k.

If I am not present here, you now know I am not lost, just not feeling like coming here lately.
This seems to happen in seasons for me. I do need prayer, personally...God knows what you don't and I trust in Him and his faithfulness and direction.

Hudson needs your prayers as well...it's been a month of sickness, 2 rounds of antibiotics, a trip to the E.R., and today, once again, a few days after being off the antibiotics, his fever is back. He is soaking his neck and collar with goooo....all the time, all day. Today he has already had 5 tonic seizures...another indicator he is fighting, again.

All you can do for us is pray...

Were back....

In the E.R.:(

Mitochondrial Disease