Curiosity cured...and a heart-warmer

Thanks for all the feedback on my question.... If blogger had a "like" button I would have "liked" all your comments. :)

I too feel FB can't serve the the need of what blogging serves...in so many ways. This is the "meat and potatoes" of our life...here in writing, on the blog. It is also serves as a journaling purpose, as well as a reference... documenting a journey like Hudson's, it's nice to look back...it's easy to forget all we've endured when your in the trenches, when the road takes so many detours unexpectedly....it's a place where I can go to recall.
I also dislike FB for the "fluff"...and the whole "look at ME" narcissistic approach. I too have seen some gross and cruel things posted and its sad but inevitable.
On the flip side, there are some good things....
I like I can get a prayer request out quick and that I can receive requests too and know how to pray for others.
I like that those who I truly cared about and lost contact with from the past,are able to reconnect.
I like the convenience of sharing pics with family and friends and you can control the privacy (unlike blogging)
It is also a great tool to spread awareness...

I wasn't ever really considering stopping blogging all together because of FB, I really dont use it that much, I don't think, and I could never lay my heart or Hudson journey out on that platform. I may wax and wane on my blogging but in the end this is where I will go to lay my heart out and type my thoughts.





So.....
Now for my heart warming tid-bit....because I just thought this was pretty darn sweet...
My sweet blogger friend, Clara Leigh, recently sent me a bunch of her mito bracelets that she makes with her kids. They make them to raise awareness and any money made is donated to the UMDF. When I got the package last week, the kids were very excited. We noticed she had made several different styles and Hailey of course had to have one. Hunter asked me if he could have one. I said "sure", and he picked one out. The bracelets are made with some sparkly, green and clear glass like beads. They have an awareness ribbon attached in silver. In my mind I was a bit surprised Hunter wanted one because it is a bracelet...and just not the most masculine thing to wear, and trust me, he is all boy!
So the next day I notice he is proudly wearing his bracelet outside the cuff of his uniform sleeve. Off to school we go. Then that night he had boy scouts, and again, his bracelet was on for all to see.
When he came home that night we had a conversation that went something like this....

H- "Mom, one of the kids at scouts came up to me and said I was a sissy because I was wearing a bracelet"

Me- "So, how did you handle that comment?"

H- "I looked him straight in the eye, told him it is NOT a girlie bracelet, but an awareness bracelet because I have a sick brother, and it stands for his mito disease."

Me "Wow Hunter, that was really great what you said and for standing up for yourself. What did he say to that?

H- "He just looked up, said nothing, and walked away"

I was super proud of him and how he handled this. I was also happy to hear when I asked him if at school if there was anyone making similar comments,he told me "no", that they were just more interested as to why he was wearing it and what it meant.

Yay for Hunter...
For having the courage to wear something that he knew might cause teasing and wearing it for the greater cause of his brother. For standing up for himself and Hudson and mito.

Proud of what this says about him,his character and love for Hudson.

Just curious...

Does anyone still read blogs, or is Facebook the new "blogger?"

Busy

The busy...
Some days I just don't know how I accomplish all that I have going on.
Between school, therapists,music lessons, work, friends, birthday parties, holidays, conferences, dr.appointments, community group,boy scouts, brownies (girl scouts),mommy dates....
I could go on and on...and I am sure I've forgotten other things we do daily...
But it just at some point catches up with me and some days I just have to fall apart.... do a whole lot of nothing...because I am one person trying to do it ALL...
So Saturday I didn't shower or get dressed until almost 3p.m and it was only because of being invited to a friends for dinner... I think I would have vegged all day otherwise!

Fall...
I LOVE this season.... Beautiful, crisp autumn days... Amazing colors all around...so much of Gods glorious beauty all over this time of year!
Love it!

Huds....
Hudson did much better on this last round of antibiotics...my gauge is how much I am suctioning. At his worst, I couldnt go anywhere without it... Including in my house... If I went upstairs, the machine followed...
I am happy to say... I have left it at home for short trips this week, and am using it waaay less. That didn't stop me from calling his pediatrician today for another 10 day prescription... Just to be on the safe side. I need to keep the "better streak" going...today I have noticed lots of sneezing, so not sure if we are dealing with a cold now...
and with the holidays next week...I certainly don't want to spend thanksgiving in the hospital, so proactive I am!

Gratitude...
In light of upcoming T- day, I am so grateful for today...
I got to meet a fellow blogger!

We have been following each others blogs a while now, and we were able to connect as they were coming to see family out here in WA.
There is nothing better to have not only the cyber connection, but also meet, hug,actually see those who you pray for...I was blessed to be able to have them at my house, and make us a brunch, and we just got to sit and chat...face to face!!!! They got to meet all 3 H's, and I got to meet almost their entire family...unfortunately their son who I pray for so often couldn't join us,
All in all,a super cool day for me!

I have gotten to meet a handful of fellow bloggers... There is really nothing better to take that connection a step further...I think so much of those who walk this by our side...I am so grateful for all of those who pray, support, and love us...I wish I could meet each and everyone of my cyber mito/seizure/sick-child/sn friends...it is a connection unlike any other!

(Thanks Shari and family for blessing my day!)

Hudson's normal?

Just a taste of what my sweet boy goes through...
If I could, I would just have the suction machine constantly attached to his mouth...I have never used this device so much on a daily basis.
It has been over a month of this...and what you will see is not him at his worst.
Tonight I will start him on yet another round of Augmentin....
I have limited our "outings" and our gatherings to avoid exposure. Yesterday was the first time in a month I went to the Y....and even after I explained to the caregivers what's been going on, at pick up I heard about the coughing and gunk they were wiping....I don't want to be looked at as one of "those moms" you know...the kind that drop their sick kids off, not caring how many kids get sick because of it. No...I don't drop my already sick, now sick-sick kid off just to go work out...but I miss working out...an hour of "me time"...but it looks as though it's not happening anytime soon.

In the video I lift his pajama top so you can see how hard his little frame is working with all this gunk...it is just heartbreaking. On top of all meds, I am now trying to keep him on a steady dose of Claritin, in case any of it is allergy related. I don't know what else to do...I feel helpless at times,most of the time... and it sucks!

I just wish...on top of everything else he goes through...we could clear this up...is it really only the beginning of the cold/flu season? Ugh...


((((((Sigh.....)))))







Hudson had a tonic seizure and this was at the tail end as it was releasing its grip on him