My very sick little H....in pictures and a quick update

Friday in the ER

Transfered to ICU

Transferred to regular floor

Tuesday (today)after bad bloody nose

Tuesday (today) getting blow-by with moisture as sats dropped with nose bleed

Hudson seems to go up and down with this virus....he has needed cpap, blow-by O2, nasal cannula, tons of suctioning....
There is no projected day we will be discharged. He is currently on a nasal cannula with O2 all day and night with the need for more than that at times. His baseline would be room air all day and O2 at bedtime...we need to get back there and stay there. It is believed this double whammy of RSV and Rhinovirus would have been a much bigger hit had he not been on Epi...I don't even want to think how much worse he could be, and am certainly grateful he is doing well considering how hard this is on his body. Seizures are there but not off the charts, which normally they would be. My mom and I have been swapping between hospital and home, and kids. When I came home to "rest" both Hunter and Hailey got hit with a stomach bug...one came home from school and started vomiting and the other began their turn in the middle of the night, vomiting at 3 a.m. So now that I am back at the hospital with Hudson, I may get some rest...as twisted as that is! At least I am not the only "nurse" here!

Please keep little H and all of us in your prayers...I have been so torn between all the kids being sick, and all wanting mommy. To boot....Haileys birthday party is this Friday and I can not disappoint.....8 girls coming to my house for a 4 hour party, and I am not even home this week to prepare....feeling the pressure for sure! Can't wait until this is all behind me and we are all under one roof again.

******TODAY...Wednesday....my LOVE!*********

ICU

I headed to children's E.R. at 2a.m. this morning....
The E.R. landed us in the PICU 4 hours later, for positive swabs for RSV, and Rhinovirus.
Thank you for lifting Hudson in prayer, and his very tired mommy.

My patience wearing thin

Had Hudson not had that very highly anticipated ENT appointment, I am certain a trip to the ER would have been had. We were up all night, he was running a low grade fever, coughing endlessly, and we were both exhausted.
Since his appointment was first thing that morning,I stayed up all night tending to his needs and praying we would make it through the night so we could make this appointment. I knew if I opted to take him to the ER before then, we would loose that appointment.

We made it.... and because we were up all night, Hudson slept through the entire appointment. Thankfully we had his MRI so Hudson didn't have to participate in the appointment a whole lot.

So... Did we come up with a plan?
We did, but nothing will change over night. Hudson's sinuses appear to have plenty of clear space where air can pass through. Where the problem is, is in the nose. The tissue inside the nose is swollen and enflamed as well as the adenoids. This can make it difficult for him to breathe, and as you can imagine, I can't use his cpap, in fact I haven't for months. The swelling and the apnea are not a good combo at all.
It was decided to put him on a steroid nasal spray, as well as continue with the antibiotic nasal spray. I was told it will be about 2 months before I should see a significant change.
TWO months!!!!!! Ugh!
The hope is the steroid will bring all the swelling down, including the adenoids, to avoid surgery. Surgery to remove the adenoids would be the last option.

I ended up getting him back on Augmentin too, because along with another fever, he started coughing up green mucous.

This all happened last Thursday.
Today the mucous continuous to drain out of his nose and mouth. I have to carry towels with us because I am constantly wiping his face and nose.... Yes, it is towel worthy, because a tissue simply doesn't cut it.
We will return to ENT in 2 months.

With all of this, Hudson has been SO cranky,and irritable. He cries and cries and cries as long as he is awake.....
No matter how much I adore him, no matter how sorry I feel for him, as much as I know this is his only way to communicate.... I am human.... and I long for peace and quiet....I wish I could take away the pain, soothe him, understand what it is exactly he is trying to tell me.... But I am left tired, frustrated, and in need of a calm, happy Hudson.... it just hasn't been so for a very long time.

My patience...

It is being tested in so many arenas of my life....

I try to understand this timeline, how I think I need things to work, how it would be perfect if God and I were on the same page with these things that are wearing me so thin....I am learning to stop praying for things to happen now, when I want it, and just trust that these things will happen when God sees fit and right... it is a very difficult thing to not argue with God why, and how....when we clearly need a break and some simple relief. Yet day after day, I struggle with things not falling into place like I wish they would....and instead of asking "why".... I am trying to replace it with..."why not"...and trust in His providence.......
I know looking back, months, maybe years from now, I will see clearly how perfect His timing was.

February 16.... Requesting prayer and a plan!

Hudson is not doing well. For some reason today he has really taken a turn for the worse.

Although he has been suffering with all this sinus crud for way too long.... months, maybe years... for some reason today his body is reacting negatively.... he has been pale, lethargic, extreme secretions...
But the worse thing of all....
His seizures have significantly changed...they have been so intense and strong it takes my breath away... he shakes and quakes as the seizure grips him... I have seen these before, but it's been a while. My head is not in a place to see this old familiar enemy...
I hate the grip it has on him... It scares both of us... and the last one he just had ...well,it even scared Hailey... and unfortunately we are used to seeing seizures, but some are worse than others and these are in his "worst" category.

My take on it is the sinus crud is so bad it is taking a toll on him.

Although we have not seen the ENT Dr. at children's, through a "connection" he took a look a Hudson's MRI while we were there last week. He determined that his sinuses were not any more impacted than that of a child his age with a case of rhinovirus.
What he did see however was...

- a deviated septum

- enlarged adenoids

- Inflammation and swelling of the turbinates

He had the nurse put a rx for a antibiotic nasal spray, which I have been using religiously for a week now. Obviously I am not seeing any real change.

Between this sinus problem and intense seizures... constant suctioning, and worrying.... I'm just ready for a plan, some resolution to this ongoing problem. I need Hudson to catch a break.... When does he get to catch a break??!!??

Please...
Just pray for answers tomorrow... A plan... Relief for my sweet, sweet boy.
I don't know how long I can bare to see him suffer with this...enough was enough long ago.




(and now he is running a fever....)