CF

So today one of the doctors informed me that because Hudson is dealing with this chronic pseudomonas, and because he is in need and on many of the treatment regimens for Cysytic Fibrosis, they are going to do a sweat test to test for CF.

I am told they think it is a slim chance that he does have it.

So please keep this is prayer.....we don't need to add to our list of ailments and diseases.

1 week down....1 to go

 We have changed our plans....

Coming into the hospital we thought we would be coming home at the half way mark with picc line in, and antibiotics. However, after much thought it was really a no brainer. Hudson needs to stay in the hospital for as long as he is on this picc line. He is getting respiratory therapy, similar to that what I do at home, but they are doing it 4 times a day. They are also very aggressive and getting alot of gunk out of him....I am definitely not as aggressive, I'm his mom, it breaks my heart to upset him or cause him more hurt or discomfort.
I also could never have the time in a day to treat him 4 times a day on top of living in the real world; two other kids, school, sports, activities, etc, etc.
So what's best for Hudson is to remain in the hospital the entire duration of intravenous antibiotics.

He is doing well. He did amazing getting his line put in and came out of the anesthesia like a rock star. He is such a strong kid.

Praying we see big improvements this week. It's been slow, but it has also been forever that he has been suffering with all these respiratory issues. I don't expect things to clear overnight, and they are not too encouraged that we will get all the pseudomonas, but my prayer is that we see a significant change and that we can get to a new and better baseline.

Quick Hospital Update

We got here Monday, they tried to place the picc line without anesthesia and Hudson was not having it. No surprise, my little fighter was so mad they couldn't place it. So he has had an IV since Monday getting two different antibiotics.

Today (Wednesday) he will be put under anesthesia to get the picc line placed. As you can imagine, I am really worried about this process. Anesthesia can be very tricky and difficult with mito.
Prayers are appreciated as always. I need him to do well with this whole process. I need to be on the other side of today with Hudson stable and well.

The unexpected call

I was feeling optimistic how things were going. The combo of nebulizer treatments, albuterol, and vest therapy, it seemed to be doing its thing, making a difference. There have been still alot of secretions, but they had thinned out, the color changed from yellow-green to frothy white. When I finally took a sputum culture it wasn't looking as nasty as it was prior before we started the above treatments.
I felt like the floor fell out from under me when I got a direct call from Hudson's pulmo asking me to call her, giving me her direct office line. I knew it wasn't good. When I found out his body is still growing the bacteria pseudomonas, I was devestated. Hudson's lung is also partially collapsed. We had to come up with a plan, an aggressive plan. With flu season right around the corner this is just heartbreaking news for me and Hudson. Mito/pseudomonas/secondary illness could be devestating.

The Plan:

Tomorrow (Monday) we go inpatient. Hudson will be getting a Picc line placed and will get intravenous antibiotics for at least two weeks. If he does well, we won't have to stay inpatient the entire two weeks. I will administer at home through the Picc line.
I was told to be "cautiously optimistic" They don't believe we will be able to kill all the pseudomonas. We will clear his lung, and the inflammation, and kill off as much as possible. The bacteria burrows itself in the tissues making it hard to reach and treat. They believe this has been in his body longer than we think.

Medicine may not eradicate it all.....but God is the greatest physician. Your prayers for this bacteria to leave his body entirely would be greatly appreciated. Also that the procedure of placing the Picc line would go smoothe and with little trauma to his body.

I will try to update during the week while in the hospital.
Thanks ahead of time for prayers for Hudson, my children at home, and my worried momma heart.