That would be FRUSTRATED!!!
Why?
A wasted day.
One doc came in all day...Dr.Carter,to just see how Huds was doing and to let me know he should be seen today re. the adenoids...no one came until 6 p.m. today!
My guess...this doc had a full clinic day, came down to us at the end of his day,knew nothing of Hudsons history,didn't look at his chest x-ray, really...just seemed clueless!
He didn't even seem to be gung-ho to do the scope for his adenoids, or make it seem that it may be a strong possibility. Just fries me when doctors act clueless...FLIPPN FRUSTRATING!!!
Then 10 min later he brings in another clueless colleague...and it ends with possibly doing a x-ray of his profile and look at his adenoids that way, or possibly injecting botox in the mouth to numb an area where it would lessen secretions...at this point I was feeling too irritated to even get what he was saying...cuz botox and secretions didn't sit well with me.
When these docs are talking to him like he understands what they are saying...like..."O.k. Hudson, open your mouth for me." "Stick your tongue out Hudson"...
Really? Makes me think they have no idea who Hudson is...I wonder if they even skimmed his records...because doesn't know language...I wish, but come on...this seizure saturated,energy depleted baby boy barely smiles, and they think he understands their simple requests...puhleez...they could not convince me they read his chart before entering our room...FRUSTRATING!
At this point...I need all of you who believe in the power of prayer to pray that whatever they need to see to indicate adenoids...they see...because, you are so right Heidi...that would be simple and a clear answer and nothing is ever simple with MITO...and I crave SIMPLE!!!
So please...Lord...hear our prayers... For our dear sweet angel boy to have a simple, clear answer, such as the adenoids...I fear the antibiotics that were started today will once again bandage the source of the problem, and for Hudsons sake we need the source revealed.
I so appreciate your faithful prayers and love. Wednesday will bring answers and leave the frustration in the past...look for our answered prayers in my next post.
9 comments:
I am storming the gates of Heaven on your behalf. I do everyday! I am so sorry this has to happen! We, too, have a special needs child, but in a completely different realm of issues. I can understand your frustration with Drs. We have been having that since before Curtis was diagnosed. It's so frustrating! I hear you! I can't give you a real hug so here's a virtual one. ((((HUG))))
Praying for the light to be brightened on the cause of all of this so the Drs. will see. Praying for writing on the wall for them. Praying that they have compassion and study and work to find the cause not just patch Hudson up and send him home. Praying that God uses divine revelation if that is what it takes!
Praying for strength and endurance for you, Debbie! Praying for peace and comfort for all the little H's.
Kim
I hate days like that in the hospital! Ugh! I feel your frustration and wish that I could change it for you!
I'm praying and thinking of you often! Love, Hugs and Prayers!!!
Just getting caught up/ I am so sorry your last two days have been so rough. Praying for you all!
Ugh, doctors that act like they know something, when they don't are the most frustrating.
If you are like me, I just want to know what needs to be done...a game plan...not all of the guessing and questioning.
Once the game plan is decided then get a move on!
Oh, praying for a game plan for him (and the doctors).
you know sometimes you just have to lose it in the hospital to get anthing done. I did when the doctor decided to cancel a test her reason she wanted him to be more stable. I lost it the child had not been stable for almost 5 months. Guess what the test was done and I got asked if there was anything else I wanted him to be checked out for. I would have been hounding the nurses asking when the ENT was coming and who was the ENT or at least hound them for x=rays or to find out what tests that needed to be done to check for the problem. Do not be afraid to voice your opinions remember you are Hudsons voice.
Debbie,
I'm so sorry that this was a frustrating day. I am praying that tomorrow will bring answers and that the doctors will actually educate themselves about Hudson before entering the room. Keep it up lady, you are doing a great job!
Meghan Clement
Oh Deb, how frustrating. You just want to shake those Drs! Honestly, very insensitive, at the very least they could of asked you what he understands. Sorry.
I was suppose to go to Childrens this morning to pick up Jacks meds but I forgot that Easton gets his lower braces on. So maybe Ill have to plan to go tonight after I pick up all the kids from school and the traffic dies down. I would love to visit if you feel like company? please email me at jhpierce3@comcast.net. I can give you my cell # there. OR Ill check here for a reply. Either way, is fine. Sometimes we dont feel like visitors!
Know Im thinking about you, praying for answers and comfort for little H. BIG hugs--
Heidi & Jack.
Heidi...I emailed you. We are back in isolation, so not sure if we can have visitors now. Would love to see youb if we can make it work. I left my cell in the email!
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