products and pics

I have had many ask about the swim device and cooling vest, so I thought I would just post the info here for whoever wants to look into what we are using.

The swim aid was actually ordered by our PT at home, but I found the website where you can find the product. It is probably a good idea to try and get it through a therapist or Dr. so insurance will cover, although it doesn't look too terribly expensive.

The cooling vest we got off the mito website, and I have been very happy with it. I bought it out of pocket, but I got a RX from Dr. S, and a letter of justification from our OT, to submit to insurance for reimbursement...we will see what they do about this one.
 Paul and I were talking about how well H is tolerating the heat, even without the vest, but then we realized we really don't see him sweat, and in this kind of heat you definitely sweat. I guess proof his body doesn't really know how to regulate, even though he doesn't appear to be wilting.

His days have been pretty good, every day is different, yesterday a great day, this morning 2 hard seizures already and vomiting...as always, no rhyme or reason.

For all of you gigglers out there, I was right there with you, i mean the poor kid looks like a pretzel in his ducky bath, and yet he lets me stuff him in it!

We had what Paul calls our 4th child at home over the weekend. Paul's "renter" works for the same co. Really nice guy...but he is what Paul describes as a big kid. He is single and 35, and lets just say I don't have to worry about him bringing girls around here...know what I mean???
Anyways, makes for a great "girlfriend" altho he is not over the top by any means.
The kids LOVE him. He took them to the park (Paul's back went out over the weekend) played in the pool for hours with them and ended the day with XBox, which Hunter has never played...and he loved it, of course! Bob (our big kid) has it hooked up to a theater like system so it is very loud.

He should be moving out this weekend, as he got a promo and will be based in CA. It will be nice to have the bath and extra bedroom. Hudson needs his own space, the kids tend to wake him up with cords draped across his body from the PlayStation, TV noise, etc.

We are considering possibly staying here a little later into August than planned. With things going so well, and some surprise "plans" in the works for Hunter's bday, we may just come home in time to get ready to go back to school. It is hard to plan anything when you have a Hudson in your life, but if things continue as they have, it may be possible to stay and play!

the parks are great because they all have covered play areas, so if we want to take little H there is plenty of shade! (the guy in the pics, is the kids playmate, Bob....or as Hailey calls him Bob-O!)

Bob-O playing in the pool with the kids

Hailey loving on her daddy!