my apologies...

for not getting on here sooner and letting those who don't know we are out...

we actually were in the ER all day, no surprise, but the shocker was we actually left the ER and went
home 5 hours later.
It all started with coughing all day Wednesday, and me bringing out the suction machine full time.
By Wed. evening Hudson had a low grade fever. I was up with him until 4 a.m. suctioning, holding his little hand through gripping seizures, gave him albuterol....you would have thought I was peculating a pot of coffee if you walked by his bedroom....his breathing was so loud and rattly.Hudson woke with a 101.8 temp, which is too high for him, especially with the continued vomiting.
First thing in the morning I called mito nurse and she got back to me and told me he likely needed i.v. drip. I soooo prepared for this trip to the hospital...I packed several outfits and all things to make me comfortable, including my pillow and blanket. Maybe that was the key, sorta like having the umbrella without any rain.
They got him on his i.v drip per his ER protocol letter. This has been such a huge life saver. Every year Hudson's mito/nuero writes up a letter directed at the E.R. explaining Hudson's diagnosis and first line of treatment, what labs need to be drawn, what they need to watch for,etc. It is instrumental in curtailing the "hudson spiral" I highly, highly recommend something like this for any medically fragile child.
Even though we were able to get him to our hospital, I was informed Dr. S was leaving that day for a conference out of town and the mito RN was also heading out.....another reason why the specific direction from his doctor is crucial....he is not always gonna be there!
Surprisingly Hudson's labs came back normal, his chest xray was seemingly clear, his fever didn't return, and there wasn't really anything getting admitted would do other than give me a miserable night sleep and get Hudson woken up and poked and prodded a dozen times.
I think the nurse was laughing when I asked if I could just leave after I got him dressed....I have never walked out of the E.R with my child...ever!!!!
He seems to have whatever the gunk is that is going around. Sneezing a ton, mucous galore, coughing, wheezy and uncomfortable. We both were exhausted last night and today even more so. I had to work this morning and my other two had no school, so they cane with me and Hudson stayed with my mom.
Hudson has still remained fever free today, but I am constantly suctioning as he is constantly coughing.
His seizures suck....big time....but that's nothing new. He is clustering again after a big tonic spasm and I believe that is the culprit behind the throwing up. The mucous and cough certainly don't help either. We have had some pretty nasty episodes of just throwing up mucous....t.m.i. I know....but it's our life...my reality.

Really grateful to be home tonight....it is a little like being on pins and needles when he is this sick....he still could go down hill if anything brews and sets in, which would send us back to the E.R.

The good part is I get lots of cuddling in with him....I don't feel guilty letting him lie around because he is too weak and tired to have to work at anything.
Tonight is snuggling movie night with me and my kids....I couldn't think of a better place to be and with better company....I adore my kids!

Thanks for the prayers for Hudson. You all are awesome....I love my blog family :)