This blog is dedicated to my son, he is among the strongest, bravest souls I know, fighting the effects of Mitochondrial Disease. Through God's grace,I share our story,one that is lived day to day...some days I am given reasons to rejoice and other days are shattered by the effects of seizures and broken dreams. At the end of the day I give it all to God, and place my precious Hudson in His hands, He who created him.
Friday, September 2, 2011
A video
Hudson has been twitching a lot the last 2 days, so I was trying to catch it for our upcoming neurology appointment. What I got instead was a spasms. A mild single spasm....hate them...the tonic ones are much more intense, but he occasionally has these as well. I didn't know *infantile* spasms would continue at age 4.
I also wanted to note his hands...notice how spotty and purple they are...his feet get this way too, and they are always cold when like this. :(
Wish it was a " happy" video to share...something he is doing, other than having seizures.
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Hudson Tyler
Our sweet angel!
2 comments:
Aw...Debbie....this makes me so sad. Poor baby can't even communicate to tell you how he feels. :( I am so sorry he is suffering like this. I am praying for Hudson and your family.
I know you hurt watching him go through this. It is good that you film them for his Drs. I have done the same myself. Hang in there, mom - you are doing so much for your kiddos and I am sure they know how much you love them. I am sending up my prayers for you. Ask your Dr. about Raynauds.. this is one of Sam's many symptoms as well with the odd hand/ feet color changes. It is all nervous system related. Hugs to you.
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