strange happenings...

I cautiously am about to reveal some crazy weird stuff that's been going on with my littlest H....

Yesterday and today have just been plain weird....Hudson has had no major seizure episodes...no hard tonics...you know...the 6-8 of those monsters he has been having every day...I am not really superstitious BUT I notice a trend of when I reveal things, they tend to go south...but how could I not want to shout this one out...even if it is only for 2 days (praying longer)

The strange part is...his behaviour is just weird too....
As the day goes he gets more and more "noisy" as if he is "talking" and by night it is more awnrey and upset, with a tear or two...but he can be noisy and awnrey for hours...today it started around 12:30 and didn't stop til I out him to bed...ahhhhh....the quiet sounds good right now! I am not complaining....trust me, I will take anything over seizures....but it does a get a little piercing....8 hours of talking/crying/screaming/whining.....

He had a day last Thurs. where he got this way, mainly crying for hours, and he did have about 6 tonics in about a 2 hour period...so I had contacted our team and his Nero wanted me to go down on the Vimpat, because we increased a few weeks ago. I was suppose to take him from 75mg/50mg a day to 50mg/50mg....since they don't have therapeutic levels for that drug, he felt it was possible that could be causing the change in behavior. Thing is.....I never took him down....I don't know, just felt like maybe his crying episode was one day...not days to come....and so the next day he was fine, and over the weekend fine....no crying episodes. So I felt good about keeping him at the higher dose of Vimpat.
Then last Friday, I get an email (who I promised to keep anonymous), asking if I was ok if Hudson was prayed for by a group of Godly men who gather every Saturday morning. I was told they would just pray for him...no specifics would be given, no name or condition, because God knows the details already. I am always grateful to anyone or group who wants to go to God on our little guys behalf....of course I said "yes!"

And here we are a few days later....
I don't know if any of Hudson's changes are related to these men gathering and praying for Hudson...I do believe in the power of prayer and the force behind faithful, godly men praying...it is all very powerful....

What I do know is that Hudson wasn't gripped today or yesterday by those hard awful seizures. I have seen some quick jerks, some spasms, but nothing like I normally see in a day. The other crazy thing is, when I hold him and get in his face and talk to him softly, in that mommy voice, he would quiet...as if he was listening....and responding.....to me! Crazy! When he is "talking" more than the crying, he is using more sounds...I was hearing m's (I am always in his face saying "momma" cuz I am convinced one day he will say it back to me) and b's, and o's.....I even felt a glimpse here and there he was looking at me, in my eyes, as I was talking to him. Last night he instantly went to sleep and it seems tonight again....I think he wears himself out with all that's going on. I realize this could be a neurological change or happening within...his behavior is literally wild, like he is a little animal....but again, I'll take that any day over seizures!

I also had one last super weird but cool incident tonight....I laid him down in his crib and then went into Hunter and Hailey's room to tuck them in. Hudson had been quiet prior to me picking him up and carrying him off to his room. I noticed he was "talking" again, which I found odd as he had seemed like sleepiness was setting in. After I left the kids room, turned off the light in the hall bathroom, I realized I never turned on Hudson's music/light show that he gets every night at bedtime. I ran back in his room, apologized to him, kissed his sweet face again, turned it on, and instantly he quieted down!!!! He's been quiet since. Pretty crazy...but pretty cool, huh???

Today his PT from school came over for our regular session. She loved the feisty Hudson. He was moving a ton and actually his muscles were pretty fired up...in fact she said to me "You should take a picture, look how well he is holding his head!"

In these pics she had him standing and kneeling  with only her support, no devices.
Clearly he is less than thrilled but look at his head! Normally he flops his head right over onto the ottoman in a allaha position, which is why she suggested the picture!

I found it pretty remarkable and I take it, just like I take the crappy seizure days we are so used to having, one day at a time. I know tomorrow may look different...but I rejoice in today...even if my ears are still ringing with Hudson yelling and screaming...it's all good! :)

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On a Valentine note...had to share some pics....cuz like I said...Hudson was one big crab a$$ yesterday!

lucky you...you are spared the crying! lol

I really didn't want to get my kids chocolate or anything sweet...they both had parties at school and I knew more sweets was the last thing they needed.

Hailey's "Valentine" from Mommy

Hunter's "Valentine" from Mommy

They were thrilled beyond belief to have sushi .....they are soooooo my kids!!!

Pour things were drenched from the rain here yesterday....happy...but drenched!



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Happy to share some pretty cool, strange happenings for once....praying things would only continue to get better......praise God for giving me and Hudson 2 wild and crazy days!